I don’t think there is anyone more fed up with the “experts” talking about the 7 stages of grief than I am. Or is it 5 stages?

Who knows?

It seems that if we don’t all experience grief the same way, there’s something wrong with us.

In my personal experiences, I know I didn’t go through all the stages, especially not in any order either. Each was unique in its feeling, and I experienced them all completely differently.

So many “experts are trying to figure out how to label everything in order to fit into a certain stereotype and feel like we belong. Belong to what? A club? Society?

I don’t know about you, but when I was grieving, I wasn’t thinking about fitting in. I was just trying to make it through the days, months, or years.

That brings me to another point of contention.

settings.

How long are we allowed to grieve?

Have you ever felt rushed? Or shamed for still grieving?

People are trying not to be offensive, but they just can’t help themselves. “Oh, does that mean you’re not dating yet?” “I’m sure he would want you to move on.” “Let me know when you’re ready; I know someone who would be great for you.”

Really?

Just stop.

We have to understand that grief is NOT a linear process.

It’s different for each of us.

It can depend on so many factors.

The person’s relationship with us, the circumstance, and the timing

Just to name a few…

My experience with grief…

When my brother died in a car crash, it was a shock to all of us. This type of death is hard for the brain to comprehend. It’s unexpected.

What I mean by that is that even though death can be a shock, no matter what the type of death is, when someone is terminally ill, it’s expected that the person will pass on.

Most of us grew up knowing that our grandparents would pass, and then our parents. There seemed to be a natural progression.

Until, of course. Life throws us the proverbial curveball!

Like a car crash, a shooting, or a suicide. Those are huge shocks to our system.

So when my brother Jim was killed in a car crash in 1987, the first thing I felt was disbelief. I was 23 at the time.

My parents grieved much differently from each other and from my other siblings and me. That was my first experience with a death other than my grandparents.

To see my parents grieve the death of their firstborn was devastating on top of experiencing my own loss. I don’t think anything can compare to the loss of a child, no matter their age.

It took me a long time to really understand how to move forward from that loss. I couldn’t keep a job. I was lost there for a while until I found meaning and purpose in a passing of that kind.

Jim Robert Wilson, 1952-1987.

A few years later, my mom was diagnosed with breast cancer. I think we all know someone who has been diagnosed with or passed away from cancer. It’s never a pleasant experience for anyone involved, especially the person who has it.

In March of 1994, I turned 30 years old. My mom was in her fifth year of remission when it was found to have spread to her brain, and we knew that she would not be here with us much longer. She passed away in September of that year.

The difference for me in experiencing my mom’s death was that I had closure. I was able to say goodbye. I was able to ask her all the questions I had. I took advantage of her time left on the planet.

Her passing was a gift. I grieved for her (my best friend) while she was still living. And then, when she did pass, I was relieved for her. She was no longer suffering, no longer worrying about us, and no longer in pain.

Mom

The hardest one of all…

Losing Daniel was like losing a part of myself. We were together for over 22 years. We had plans. Then those plans went out the window in the summer of 2017.

It started a few years prior, but we never really connected the dots. He used to have twitching in his body while he slept; sometimes it would wake him up. It wasn’t every night, but it was significant enough for him to mention it.

Also, really bad cramping here and there, or what we call “Charley horses.” I have no idea why they are called that, but they were pretty bad.

Anyway, it started with random falls starting in April of 2016. No pain. His legs would just give out, and then he would get back up. It started to happen more frequently, and then he started using a cane.

When the slurring and choking started, we got worried. Those got progressively worse until we had to get him on a feeding tube.

Anyway, he went from a cane to a walker to a wheelchair within one year and passed away in July of 2017.  He was ultimately diagnosed with ALS (Amyotrophic Lateral Sclerosis). I had to be the wife, mother, nurse, friend, girlfriend, caretaker, etc. We had lost everything a few years prior, so we didn’t have the funds to hire anyone to help us.

Needless to say, I was a complete wreck!

I was on the verge of a nervous breakdown and thought briefly about ending it all. Not because I didn’t have anything to live for, but because it was so fucking hard!

Daniel and I

No one should ever have to see anyone in that condition. No one should ever have to see someone disintegrate into skin and bones, have to wipe their butt, or feed them through a tube.

It was the most humiliating disease for him. And for me, it was heartbreaking.

Daniel’s passing took a good 18 months to feel somewhat normal again.

I definitely have undiagnosed PTSD from his illness, taking care of him, and, of course, the loss of my best friend and partner of 22 years.

There are times now that I can talk about it without getting emotional, and other times I just break down.

We should not feel ashamed to express how we feel.

It should not matter how much time has passed. Grief does not run on anyone else’s timeline, and it does not end on cue.

But here is what nobody told me, and what I rarely hear anyone talk about.

There is a chapter after grief that is just as disorienting as grief itself.

It is the chapter where you have rebuilt. Where you are functional again, maybe even successful. Where people around you assume you are fine because you look fine.

And yet something still feels off. The life you worked so hard to reconstruct does not quite feel like yours. The patterns you thought you left behind in the old life followed you into the new one. The question that will not go away: “Am I even going in the right direction?”

That is not grief anymore. That is misalignment. And it has a different solution.

This is the work I do now. Not grief coaching. I work with people who are past the acute loss, who have done the rebuilding, and who are standing in that rebuilt life, wondering why it still does not fit.

If that is where you are, you are in the right place.

Soul First. Strategy Second.